Tag: death

  • Disenfranchised Grief

    Disenfranchised Grief

    Disenfranchised grief is not acknowledged, supported, or socially validated. It can occur when a person experiences a significant loss, but others minimize it, judge it, or view it as less legitimate. As a result, the grieving person may feel isolated, misunderstood, or unable to openly mourn. Examples include losses that society considers “less serious” (such as the death of an elderly parent, an ex-partner, a pet, or a miscarriage), or situations where the mourner’s relationship to the deceased is not recognized, as in same-sex relationships.

    The death of an elderly parent often impacts older adult children. Even expected losses can carry significant emotional weight. Society often minimizes this grief, viewing it as a natural event. Adult children may face psychological shifts, confront their own aging, and reassess priorities and relationships. Loss can alter family dynamics, leading to feelings of responsibility for traditions and cohesion. When older adults witness their parents’ gradual decline before death, intense feelings of sadness, loneliness, and disorientation often arise, sometimes mixed with relief from caregiving burdens, leading to guilt. Grief affects identity, as losing a parent can feel like losing a central anchor. Despite these struggles, some individuals find opportunities for personal growth and meaning, though this requires social validation and support, which may be insufficient.

    Bethany Morgan Brett notes that societal attitudes toward grief vary based on the age of the deceased. After the death of an older person, people often use clichés like “they had a long life” to suggest a sense of closure due to the “timeliness” of the death. The death of an older parent is seen as a normative life event, which can lead to the grief experienced being minimized or overlooked. This reflects a hierarchical view of grief, where the loss of a child is generally perceived as more tragic than the loss of an elderly parent. Such views can hinder the acknowledgment and processing of deeper emotions associated with the loss.

    The excellent grief support website, “What’s Your Grief,” suggests that it’s important to recognize that when comforting someone whose parent has died, you can’t “fix” their situation. Instead of trying to console them, focus on acknowledging their pain, being present with them, remembering their loved one, and showing support both in the immediate aftermath and over the long term. One way to talk about a parent’s death is to say, “Please tell me about your parent”, which opens a more personal conversation, allowing the bereaved to share their thoughts and feelings. Check out their article, “What to say to someone whose mother died or father died”, linked below.

    Writing a letter to the departed may help the bereaved express feelings about loss. Expressive writing is an approach to loss that supports healing. Sitting down to write this letter to a loved one begins by letting go of any concerns about spelling or grammar, word choice (curse words are allowed!), or worries about anyone reading or critiquing the document. One can simply start writing and not stop until it feels complete. A second step could be to read the letter and transfer significant passages to another document, such as a journal. This process can be included in psychotherapy when an empathetic and grief-informed professional provides caring treatment for loss.

    References

    What’s Your Grief. (2021, March 26). What to say to someone whose mother died or father died. https://whatsyourgrief.com/what-to-say-to-somone-whose-mother-died-or-father-died/

    Morgan Brett, B. (2023). The loss of parents in later life. In The Child–Parent Caregiving Relationship in Later Life: Psychosocial Experiences (pp. 97–111). Policy Press. https://doi.org/10.46692/9781447319702.007

  • The End of Caregiving

    The End of Caregiving

    A study of dementia caregivers revealed that those who were prepared for the death of their person with dementia (PWD) had better bereavement outcomes than those who were not. The study identified several themes that contributed to poor grief outcomes, such as the perception of the dying process as traumatic or unexpected; traumatic loss of the caregiver role and accompanying loneliness; and perceived unavailability of support, either pre- or post-loss (Supiano et al., 2022).

    While the majority of bereaved dementia family caregivers emerge after loss through largely positive and adaptive grief processes and resume previous levels of function after the death of their PWD, an estimated 9-25% experience complicated grief (CG), which increases with age and is associated with worse biopsychosocial outcomes for the griever (Supiano et al., 2022). CG is “characterized by yearning for the deceased, intrusive thoughts of the person who died, unrelenting sorrow, withdrawal from previous social relationships, difficulty accepting the death, and a sense that life is without purpose” (Supiano et al., 2022, p. 369). 

    Caregivers of PWD face increased poor outcomes because their care recipients are more likely to experience distressing events that may lead to poorer quality of life, earlier institutionalization, more hospitalizations, and risk of elder abuse (Young et al., 2023).

    Non-White caregivers tend to provide care for a longer duration, requiring more time-intensive care, engaging fewer formal support services than their White contemporaries. Non-White caregivers are more likely to face negatively biased interactions with health care services on behalf of their care recipients (Young et al., 2023)

    A combination of family and community support can ease caregivers’ transition to life after the passing of their loved one. Spiritual and religious communities offer fellowship and understanding from those who have walked this path before.

    Hospice care provides support for caregivers and family/friends of the terminally ill. Many people wait longer than they have to before requesting these wonderful services. According to Barbara Karnes, RN and end-of-life educator, “Hospice helps these patients live as comfortably as possible with the understanding that they won’t be cured. Hospice also provides reassurance and practical assistance to families of the patients.” Karnes’ blog offers practical and warm end-of-life education.

    Thanks for reading,
    Leilani

    References:

    Supiano, K. P., Luptak, M., Andersen, T., Beynon, C., Iacob, E., & Wong, B. (2022). If we knew then what we know now: The preparedness experience of pre-loss and post-loss dementia caregivers. Death Studies, 46(2), 369–380. https://doi-org.library.capella.edu/10.1080/07481187.2020.1731014

    Young, K. M., Young, T. D., & Young, K. (2023). Caring for the caregiver in dementia. The Journal of Family Practice, 72(5), 215–219. https://doi.org/10.12788/jfp.0606